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2016 MCSCI Child Ambassador

Kamille’s Story

Kamille Ware is Martin Center Sickle Cell Initiative’s 2016 Child Ambassador. She was born on March 31, 2000 in Indianapolis, Indiana. Kamille was diagnosed with Sickle Cell Anemia (SS) through the newborn screening process. Her first Sickle Cell crisis occurred in July of 2000 - only three months after her birth. In 2002 and 2006, she experienced her first extended hospital stays for pneumonia and acute chest syndrome. In 2008, she was hospitalized for 10 days for acute chest syndrome, pneumonia once again. During this hospitalization, she remained in the Intensive Care Unit for 3 days. She also received her first, and only, blood transfusion. After this hospital stay, Kamille was diagnosed with asthma. In 2012 and 2014, she was again hospitalized for acute chest syndrome and pneumonia. She stayed in the hospital for 9 days in 2012, and for a week in 2014.

Throughout her childhood, Kamille has never really able to play and interact with other children her age like she wanted to. While everyone else would be outside having recess, she would have to stay inside the school building unless the outside temperature was over 65 degrees. In middle school, when her friends were taking gym class, Kamille would have to find an alternative course to take because gym would always exhaust her or send her into a Sickle Cell crisis. School has always been a challenge for Kamille but education has been very important to her. No matter how long she would be absent from school (as long as 3 weeks at a time), she was always able to catch up and remain on the honor roll.

Even though Kamille has these challenges, she tries to distract herself by getting involved in various activities like musical productions, Girl Scouts, church choirs, summer camps, enrichment camps, volunteer work, JROTC, the 2015 Military Ball and summer internships. She is also a proud alumni of the Center for Leadership Development.

Kamillle is currently a sophomore at Crispus Attucks Medical Magnet High School in Indianapolis where she has a 4.0 GPA. She has learned to balance a social, religious, and educational lifestyle while still managing to take care of her health. Kamille says, “Even though I live with Sickle Cell Anemia I don’t let it live through me.”

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